Why severe sickle-cell pain has been neglected

From Nature, 25 August 2021: “Dealing with pain is messy,” says John Roberts, an oncologist at the Yale School of Medicine in New Haven, Connecticut. It can’t be measured objectively through biomarkers or visualized on a scan, the experience of it varies enormously from person to person, and it can be fiendishly difficult to treat. Continue reading Why severe sickle-cell pain has been neglected

Life beyond the pain of sickle cell disease

From Nature Outlook, 13 November 2014: At first glance, a child with sickle-cell disease may appear healthy. But what you cannot see — and what dominates the child’s life — are bursts of searing, crippling pain that strike without warning. These episodes require trips to hospital, and even the highest doses of the most powerful Continue reading Life beyond the pain of sickle cell disease