Why severe sickle-cell pain has been neglected

From Nature, 25 August 2021: “Dealing with pain is messy,” says John Roberts, an oncologist at the Yale School of Medicine in New Haven, Connecticut. It can’t be measured objectively through biomarkers or visualized on a scan, the experience of it varies enormously from person to person, and it can be fiendishly difficult to treat. … Continue reading Why severe sickle-cell pain has been neglected

Life beyond the pain of sickle cell disease

From Nature Outlook, 13 November 2014: At first glance, a child with sickle-cell disease may appear healthy. But what you cannot see — and what dominates the child’s life — are bursts of searing, crippling pain that strike without warning. These episodes require trips to hospital, and even the highest doses of the most powerful … Continue reading Life beyond the pain of sickle cell disease